Again, today it hit home with us just how precious life is and how much all the wonderful charities and hospitals out there do to help protect and save our most precious gifts - our babies.
We are really saddened to hear today that a local Canberra family has lost one of their little twins born 25 weeks premature. Mum Katie, has shared that their precious little Amelia's heartbreaking struggle ended at Royal Prince Alfred Hospital in Sydney late last week.
You see, this has not been the only struggle that this beautiful family has had to endure this year as their son Hugh suffered from acute liver failure in May. Hugh is thankfully well on the road to recovery. Being a Canberra resident means many trips to Westmead hospital for follow up treatment and appointments for Hugh.
On 30 July, Katie was concerned some thing wasn't right with her pregnancy and so that night went to Canberra Hospital to have the twins checked, she hasn't been home since. The next day, supermum Katie was flown to Sydney to undergo treatment for what would be an alleviation for her twins Stage 3 Twin to Twin Transfusion Syndrome. Unfortunately, due to complications with the surgery, she unexpectedly went through an enduring delivery to welcome her 25 weeker twins on 3 August. Sadly, exactly 2 weeks after the birth of Amelia and Hannah, Amelia passed away surrounded by the love of her family.
As you can imagine it is quite a challenge at this sad time to be away from home, support networks and her son, while Katie (and Daniel when possible) stays in Sydney to be with little Hannah. Beautiful little Hannah is fighter and a little character, Katie says.
Unfortunately, the hospital where the twins were admitted has no accommodation on site for family/patients who need to travel for treatment and little Hannah cannot be transferred home to Canberra Hospital until she is stable and NICU beds are available. Any assistance to help Katie and her family to pay for reasonable accomodation and living expences away from home would be appreciated.
Katie and Daniel have unselfishly told friends that donations to the charities such as Heartfelt, Send Hope Not Flowers, Red Nose, Little Wonder or Life's Little Treasures are welcome in honour of Amelia.
In addition, a very kind friend and fellow micropremmie mum as set up a gofundme page to help Katie, Daniel, Hugh and Hannah with the costs associated with being by Hannah's side during her time in Sydney.
We would be very grateful for any support you can offer to this wonderful Canberra family. If you would like to donate please visit: https://www.gofundme.com/help-katie-super-mum or support any of the above charities listed in Amelia's name.
Sending you love and strength Katie, Daniel, Hugh and little Hannah xx